Participant information sheet

Take some time to read this information sheet and discuss it with others if you want to. It is up to you whether you decide to take part in this study. Please feel free to email us at rjl48@le.ac.uk to ask us any questions or for more information.

What is this study about?

We're doing this study because we want to find about how you think and feel about yourself. We would like to know about a variety of topics, such as:

  • How you eat and think about food
     
  • How kind you are to yourself when you’re going through a difficult time
     
  • How you think and feel about your body

Why is this study important?

We would like to find out what sorts of things have an effect on the health of people who have had a kidney transplant. Even if you haven't had a kidney transplant, we still want to hear from you. It's important that we get the views of a wide range of people. We want to use what we find to help people who have had a kidney transplant to live happier and healthier lives.

Who can take part in this study?

To take part in this study, you must either:

  • Be living with a kidney transplant with a kidney function of 15% or more (i.e. an eGFR of 15 or more), OR
     
  • Not have any type of kidney disease (to the best of your knowledge)

If neither of these apply to you then unfortunately you will not be able to take part in this study.

Who is running this study?

This study is being run by the University of Leicester and the Leicester Kidney Lifestyle Team. It is funded by the Economic and Social Research Council.

Are there any risks or benefits to taking part?

There shouldn't be any risks to taking part in this study. If you need to, you can withdraw from the study any time before you submit your answers by closing your browser. After you've submitted your answers you won't be able to withdraw them. This is because they are anonymous so we won't be able to identify them as yours.

There are no direct benefits to taking part in this study. You will not be paid for your time but you can choose to enter your email address into a prize draw to win a £10 gift voucher.

How will you use the information I provide?

  • We will keep all information about you safe and secure on password-protected computers
     
  • We will keep anonymous data from the surveys for 7 years from the date of the end of the study. We will keep it on secure University of Leicester servers. The research team might use the anonymous data in future studies.
     
  • We need to manage your records in specific ways for the research to be reliable. This means that we won’t be able to let you see or change the data we hold about you.
     
  • If you enter your email address into the prize draw, we will delete it as soon as the draw has taken place.
     
  • We will give your information a code so that only the research team will know your name and contact details
     
  • When we have finished the study, we will share the anonymous survey data to a secure archive. This means that it will be available for other researchers to use in future studies.

At all times this research study will comply with the General Data Protection Regulations (GDPR, 2018) approved by the EU parliament on 14 April 2016 and passing into UK law with effect from 25 May 2018. If you require more GDPR data protection information then you can access this via:

Information Assurance Services,
University of Leicester,
University Road,
Leicester,
LE1 7RH,
T: +44 (0)116 229 7945
E: ias@le.ac.uk
W: https://le.ac.uk/ia

Who has reviewed this study?

The University of Leicester’s research ethics committee has approved this study. This means that they are happy that the study respects your rights, all risks have been reduced, and we have given you enough information to make an informed decision about whether to take part. If you have any concerns or queries about the way in which the research project has been conducted, you should contact the Chair of the University Research Ethics Committee on ethics@le.ac.uk.

What will happen to the results of this project?

The anonymous results from this study will form part of the PhD thesis of one of the research team. The results will also be used in journal articles and conference presentations. We will also share the results through public involvement meetings and online.

We would be happy to send you a summary of the findings once the study is complete. If you would like us to do this, please email us on rjl48@le.ac.uk. We will only use the contact details you give us to send you the summary of the findings. Once we have done this, we will delete your contact details from our records.

Please share this survey if you can!

We want to hear from people who have a kidney transplant AND people who don't have kidney disease. This is so we can see what similarities and differences there are between these groups of people.

If you know someone who does not have kidney disease OR who has a kidney transplant, please consider sharing this survey with them.

You can do this by sending them this link or sharing it on social media: https://leicester.onlinesurveys.ac.uk/perceive

The research team

  Rebecca Linnett
  PhD researcher

  Department of Health Sciences, University of Leicester,
  George Davies Centre, University Road, Leicester, LE1 7RH

  Email: rjl48@le.ac.uk
 

  Stephanie Hubbard
  Associate Professor

  Department of Health Sciences, University of Leicester,
  George Davies Centre, University Road, Leicester, LE1 7RH

  Email: sjh62@le.ac.uk
 

  Alice Smith
  
Professor

  
Leicester Kidney Lifestyle Team, University of Leicester Academic Unit,
  Leicester General Hospital, Leicester, LE5 4PW

  Email: alice.smith@le.ac.uk


  Noelle Robertson
  
Professor

  Department of Neuroscience, Psychology and Behaviour, University of Leicester,
  George Davies Centre, University Road, Leicester, LE1 7RH

  Email: nr6@le.ac.uk

Further information and support

Would you like to find out more about kidney disease? Are you looking for support? If so, you might find the following resources helpful.
 


Kidney Care UK
www.kidneycareuk.org
Telephone helpline: 01420 541 424 (Monday to Friday, 9am-5pm)
Email: info@kidneycareuk.org

 


National Kidney Federation
www.kidney.org.uk
Telephone helpline: 0800 169 09 36 (Monday to Friday, 9am-5pm)
Email: helpline@kidney.org.uk



Kidney Patient Guide
www.kidneypatientguide.org.uk
(Information and forums)



Kidney Research UK
www.kidneyresearchuk.org
(Information online)



Samaritans
www.samaritans.org
Telephone helpline: 116 123 (24 hours a day, 7 days a week)
Email: jo@samaritans.org



SANE
www.sane.org.uk
Telephone: 07984 967 708 (leave a message)
Support forum and textcare also available

If you would like to take part in the study, please click the "Next" button below.